9th Edition – January 2020

Hello to you all – and a very happy New Year!

Here is our latest news…please share with all the people who are involved in your project, or anyone else interested!

And please put key dates in your diaries

Latest news

The ten research projects are all moving forwards, and some have made links with others to share ideas. For example, Ron from the DEEPNess project visited EDUCATE’s project (both working on Alexa) before Christmas and had a really valuable exchange of learning. The Thred group in Liverpool have visits planned to interview DEEP groups in Scotland, Wales, London and Northern Ireland!

We are thrilled that our first article about Dementia Enquirers has been published in ‘Dementia’ the international journal (19,1). You can read it here http://bit.ly/37FQYzx. It was co-authored by Peter, Dory, Howard, Carol, Agnes, Mhari, Wendy, Tracey, Rachael and Philly.

Dementia Enquirers was also mentioned by Howard Gordon in his article in the same edition, “Co-producing research – A personal experience …”.

We are also delighted to have launched, earlier this month, our new funding partnership with The National Lottery Community Fund. As well as enabling DEEP and Dementia Diaries to continue and develop over the next 4 years, this will also allow us to being Dementia Enquirers under the Dementia Voices umbrella – allowing much more cross-over between all these projects.

The first ZOOM gathering of the New Year mainly for the projects on 14th January was very ably hosted by Paul from the Thred group in Liverpool. Thanks to Wendy, Mhari, Louise and Ron for joining. We discussed lots of things, including:

  • Progress on different projects in Lewis, York and Liverpool
  • Need for good media coverage when we get our findings (Wendy nominated as our Media Director as she has great links like Jane Garvey and Victoria Derbyshire)
  • A reminder about the research pack and what it contains
  • Some common issues:
    • Hard to get people together and keep the momentum going
    • Ways of reminding people wat their project is about, where they are up to and what they need to work on next – including short films, recordings on a Dictaphone, Journals on Amazon, flipcharts etc.
    • Ron offered to do interviews with projects on his DEEPNess Radio to form part of the projects’ materials
    • Mhari will explore how we might link with Churches

Coming up – please put these in your diary if relevant!

6 February: Tommy and Paul will be presenting on Dementia Enquirers at the

Dementia Action Alliance (DAA) conference

11 February: Dory will present at a lunchtime seminar at LSHTM

12 February: twenty invited participants will meet in London to discuss coproducing a new ‘Gold Standard’ for ethical dementia research. We will look at the feasibility of piloting an ethical approval process for the next round of Dementia Enquirers projects (from summer 2020). We’re keen to identify allies and supporters who can help with expertise, encouragement, training, promotion, articles etc.

13 February: the Pioneers will meet to plan the processes for Cohort 2 (the next 10 projects which will start in summer 2020).

26 February: The next ZOOM gathering mainly for the projects will again be hosted by Paul from Thred. at 11.000 am. Do join if you can!

10 May: We are already planning the Summer 2020 event for all projects and Pioneers and several Advisors – to share learning from the first cohort of research projects. We have provisionally booked St Katharine’s Foundation in East London for Wednesday May 20 (arriving on evening Tuesday 19 May and staying overnight). Places for each project will be limited to 3 per project, including any supporter/facilitator. Invitations will go out soon – but please hold the date.

Belonging: the January DEEP newsletter features a discussion question about ‘belonging’. We plan to run a workshop to create a new measure.

And finally:

If you have any queries, thoughts, inspirations or anything at all, please email Rachael at rachael@myid.org.uk or call her on 01392 420076.

And don’t forget you can find all the Dementia Enquirers resources at https://www.dementiavoices.org.uk/dementia-enquirers/. These include a free research pack; podcasts; webinars; short films; audio Diaries and all previous newsletters.

We look forward to talking with you all again soon

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