5th Edition – September 2019

Hello to you all! Here is our latest news…

Our first 10 research projects, all led by DEEP groups, have kicked off!

  • Urban and rural transport systems (DEEPThread Liverpool)
  • Cognitive Stimulation Therapy (Our Voice Matters, Hartlepool)
  • Having to give up driving (Sheffield Shindig)
  • Living with dementia with or without a care partner (York Minds & Voices)
  • Does class, intellect or ethnicity have an impact on the dementia pathway for the person with dementia? (Beth Johnson Foundation, Stoke-on-Trent)
  • What do DEEP group members and Admiral Nurses know about each other? (Shrewsbury Riversiders and York Minds and Voices)
  • Dementia as an ‘Invisible Disability’ – pros and cons (SUNshiners, Kent)
  • The impact of the teaching social workers about dementia at the local University (Memorybilia Kent)
  • The experience of using Amazon Alexa (EDUCATE Stockport)
  • Making an instructional video for Amazon Alexa (DEEP Ness, Scotland)

Sadly, the final project selected has had to pull out due to health issues but may come back next year.

What an amazing range of projects!

Have you seen our new short (6 mins) film? It shows the Dementia Enquirers Pioneers reflecting on the process of reviewing this first set of research proposals in June 2019. Watch here http://bit.ly/30hKPWy


While at Woodbrooke, the Advisors and Pioneers also had a wonderful discussion on ‘what does it mean to be in the driving seat of research?’ You can hear the resulting podcast here: http://bit.ly/33akUlY

Coming up

  • There will be a ZOOM webinar for the 10 new projects on 17 September (11.00-13.00). Others welcome to join if you want.
  • This summer we have worked with some of you on a new (or adapted) ‘Measure of Belonging’ – with Chris Clarke from Hull University. We hope to have this ready to pilot with the 10 groups by September.
  • The next meeting for Pioneers is: the evening of Tuesday 24 September, to lunchtime Thursday 26 September at Royal Foundation of St Katherine (East London).
  • Plans are also shaping up for a London seminar on Tuesday 3 December (International Day of Persons with Disabilities) about learning from and with the wider disability movement. This will be hosted by the

Please let us know which of the above you would like to come to.

Ideas for you this month

Meanwhile, here are a couple of ideas of how you can support the project:

(Diarists) record a Dementia Diary about how you are feeling about the project

(Everyone) keep handing out the new postcards (see below – we can send more) and telling everyone about what we are doing!
If you have any queries, thoughts, inspirations or anything at all, please email

Rachael at rachael@myid.org.uk or call her on 01392 420076.

We look forward to talking with you all again soon

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