4th Edition – July 2019

Hello to you all! Here is our latest news…

  • The most exciting news is that the first 11 research projects were selected at our Pioneers meeting in early June at Woodbrooke in Birmingham. They are from all across Scotland and England, and cover a wider range of topics. More detailed information on the successful groups and their projects soon!
  • We will now be contacting some of the many academic allies who have offered support, to invite them to mentor one of the successful groups.
  • We were joined by some of our advisors at Woodbrooke and had a fantastic debate on the topic of: “What does “people with dementia in the driving seat of research” really mean?” We will draft a blog from this debate and publish a short film.
  • And we have a new webpage for Dementia Enquirers on the DEEP website – here it is https://www.dementiavoices.org.uk/dementia-enquirers/. One of the things you will find there is the new research pack for DEEP groups (if you download it please complete the brief Survey). Also a short film here http://bit.ly/30hKPWy of reflections on the process of selecting projects. We will keep adding films, Diaries and other resources as they are developed.

Coming up

  • Over the summer we will work with some of you on a new (or adapted) ‘Measure of Belonging’ – with Chris Clarke from Hull University. We hope to have this ready to pilot with the 11 groups by September.
  • The next meeting for Pioneers will be at the Royal Foundation of St Katherine (East London). We’re trying out 2 nights this time, to make it more relaxed and give everyone more time for breaks, rest and informal chats. So folk will arrive mid-afternoon or evening on Tues 24 Sep, and finish lunchtime Thurs 26 Sep. Do let us know if you can come (or, if not for all, for part).
  • We are also planning a London seminar on Tues 3 December (International Day of Persons with Disabilities) about learning from and with the wider disability movement. We are delighted that this will be hosted by the London School of Hygiene & Tropical Medicine with the support of our Advisor, Tom Shakespeare.

If you’d like to be involved in any of the above, please let us know!

Ideas for you this month

Meanwhile, here are a couple of ideas of how you can support the project:

  • (Diarists) record a Dementia Diary about how you are feeling about the project
  • (Everyone) keep handing out the new postcards (see below – we can send more)

If you have any queries, thoughts, inspirations or anything at all, please email Rachael at rachael@myid.org.uk or call her on 01392 420076.

We look forward to talking with you all again soon

Download pdf

  • Confidence in public transport

  • Enquiry on how easy it is to find print based information on dementia services in Camden

  • How living through COVID-19 pandemic and lockdown affected physical and mental well being for people with dementia