Demential Logo
  • A  A  A  
  • A  A  A  

News

sepnewsletter2021

Dementia Enquirers Newsletter

15th Edition – September 2021

maynewsletter2021

Dementia Enquirers Newsletter

14th Edition – May 2021

de–press-release-thumbnail

Launch of 7 Dementia Enquirers project reports

Dementia Enquirers is a 3 and a half year project (to the end of 2022), funded by The National Lottery Community Fund,  the largest funder of community activity in the UK.. It’s aim is to put people with dementia in the driving seat of research – by supporting them to lead and control their own bottom-up enquiries on issues they find important. Thanks to National Lottery players we can continue to support people with dementia.”

Consequently, the projects are varied, based on the questions and interests of different groups.  Although the projects started at the end of 2019, groups had to contend with the impact of Covid-19 on their work. There is much creativity, pragmatism and learning contained within these project reports and a large amount of pride:

“We believed we could…and we did!” 

The projects are:

  • Thred, Liverpool: How can urban and rural transport systems help people diagnosed with dementia live independently for longer?
  • Minds and Voices, York: The pros and cons and particular needs of those living alone with dementia and those living with a care partner
  • Beth Johnson Foundation, Stoke on Trent: Does class, ethnicity or intellect affect the dementia pathway?
  • Riversiders in Shrewsbury (with Minds and Voices, York): an enquiry into the what DEEP and Admiral Nurses know about each other
  • Our Voice Matters, Hartlepool: An enquiry into the benefits of groups for people with dementia
  • DEEPNess, Isle of Lewis: The necessary components of a dementia-responsive teaching video
  • EDUCATE, Stockport: The EDUCATE Echo project

Visit  https://dementiaenquirers.org.uk/individual-projects/ to read all the project reports.

These are the first grants awarded under the Dementia Enquirers programme. We are now getting ready to support a new cohort of DEEP groups to lead their own research. From our learning so far, some key messages are emerging:

  1. People with dementia can lead their own research projects – both drawing on previous life skills and learning new ones to explore the questions that most interest them
  2. The research questions that people with dementia generate can be different from existing research questions. They are based on lived experience – on topics that will make a real difference in people’s lives
  3. “Being in the driving seat of research” doesn’t mean that you have to do everything yourself. Team work and support can really help. But controlling the research and leading the way gives people with dementia a huge boost in confidence
  4. Making the language and processes of research more accessible helps everyone!
  5. Research between people with dementia makes communication and engagement more possible, because having something in common increases trust

Notes to editors: 

Dementia Enquirers is a project at Innovations in Dementia. It is funded from 2018-2022 by The National Lottery Community Fund. To find out more visit https://dementiaenquirers.org.uk/

DEEP is the UK network of dementia voices. It connects approximately 100 groups of people with dementia to inspire, share and learn together.  It is supported by Innovations in Dementia. To find out more visit https://www.dementiavoices.org.uk/

de–news-article-thumbnail

Call for new Dementia Enquirers projects – Spring 2021

We are delighted to launch the application process for Dementia Enquirers grants. These give DEEP groups a chance to carry out their own research about a question that they are really interested in.

Our first projects included research about living alone with dementia, Admiral Nurses, using Alexa, driving, transport and more. Together we learnt a lot about people with dementia being in the ‘driving seat of research’. People told us that they grew in confidence and that it was great to learn new skills.

You can apply for between £5000-£8000.

We do want to stress that you can use the grant for quite simple research – for example, you could run a survey, do some interviews or group discussions. The grant can also pay for people’s time – including group members and any supporters. We especially want to encourage groups who haven’t had a Dementia Enquirers grant before.

If you would like more information, and an application form please contact Rachael Litherland by email rachael@myid.org.uk

The deadline for applications is Friday 25th June 2021.

We will be hosting a webinar on Wednesday 19th May if you want to talk anything through.

november2020

Dementia Enquirers Newsletter

13th Edition – Nov 2020

july2020

Dementia Enquirers Newsletter

12th Edition – July 2020

april20

Dementia Enquirers Newsletter

11th Edition – April 2020

mar20

Dementia Enquirers Newsletter

10th Edition – March 2020

jan20

Dementia Enquirers Newsletter

9th Edition – January 2020

dec19

Dementia Enquirers Newsletter

8th Edition – December 2019

nov19

Dementia Enquirers Newsletter

7th Edition – November 2019

oct19

Dementia Enquirers Newsletter

6th Edition – October 2019

sep19

Dementia Enquirers Newsletter

5th Edition – September 2019

july19

Dementia Enquirers Newsletter

4th Edition – July 2019

may19

Dementia Enquirers Newsletter

3th Edition – May 2019

mar19

Dementia Enquirers Newsletter

2th Edition – March 2019

jan19

Dementia Enquirers Newsletter

1st Edition – January 2019

    Twitter

Have you read or used our #DementiaEnquirers research pack? We would love to know what you think. You can let us know via a short survey here: https://dementiaenquirers.org.uk/publications/Dementia-Enquirers-Research-Pack-Survey/ If you haven't looked at the pack yet what are you waiting for? Read here: https://bit.ly/3mN1M8d

Bring yourself up to date about #DementiaEnquirers with our latest Newsletter here:

https://dementiaenquirers.org.uk/wp-content/uploads/2021/10/de-newsletter-15-.pdf

Very excited to be supporting the Leeds #DEEP group of people with dementia to carry out their #DementiaEnquirers research project into new opportunities after diagnosis. @LeedsPlayhouse @leedsdaa @LBUdementia @TNLComFund

Excited for the 8 #DEEP groups beginning their new #DementiaEnquirers research projects-all led by people with dementia. Array of topics inc. post diagnosis,impact of music making,intergenerational game & accessible info. More here: https://dementiaenquirers.org.uk/cohort3/ Thx to @TNLComFund

“The biggest encouragement we’ve had is that people have listened to us”

Listen to ppl w #dementia reflecting on the amazing research projects they have carried out with support from #DementiaEnquirers

https://dementiaenquirers.org.uk/films-webinars-and-podcasts/podcasts/

@TNLComFund

Understand the song and beat dementia!

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/08/06/singing-is-more-than-singing/

Song # 210

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/07/29/breaking-up-is-hard-to-do/

.@george_rook & Philly Hare look forward to presenting on #DementiaEnquirers tomorrow (28/7) with @researchIP

More info here:
https://bit.ly/3i5LINC

#DEEP groups will very soon hear if their applications for #DementiaEnquirers research grants were successful.

Huge thanks to the 9 Pioneers - all ppl w #dementia - who worked so hard to make good & fair decisions

Ground-breaking stuff!

@TNLComFund
https://dementiaenquirers.org.uk

A New Treatment for Alzheimer's!?

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/07/26/two-processes-that-work-in-unison-maybe/

Are these two causes related?

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/07/24/the-mad-book-chapter-14/

Great to see #DementiaEnquirers as an example of good practice in supporting 'user-led' research in the new @NIHRresearch publication "Public Involvement in Social Care Research"

Read the full paper here https://bit.ly/3Bcxi5E

@TNLComFund

Just brilliant - great to see⬇️
#dementia #DEEP #DementiaEnquirers #research #Peers

The Mad Book Chapter 9

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/07/06/the-mad-book-chapter-9/

.@TommyShakes Brian from @YorkMandV has just finished the 'dementia book' (the #DementiaEnquirers report - https://dementiaenquirers.org.uk/wp-content/uploads/2021/05/minds-and-voices-in-york_report.pdf ) and reports 'it's brilliant, fantastic, the best book i've ever read, better than the Bible' No need for academ-ese!! @jdeanknight

Six Months Gone! Six Months to Go!

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/29/six-months-gone-six-months-to-go/

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/22/in-the-summertime/

The Mad Book Chapter 8

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/22/the-mad-book-chapter-8/

The Mad Book Chapter 7

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/20/the-mad-book-chapter-7/

You're My Best Friend
#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/18/youre-my-best-friend/

If you forget, this can happen!

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/18/if-you-forget-this-can-happen/

Excellent work by the #DementiaEnquirers. Great to see people living with #dementia leading research, and a really important contribution.

A great read for anyone interested in coproduction/research led by people with lived experience. @TommyShakes
@Innov_Dementia #DementiaEnquirers @doryitsme @agnes_houston @howardgordon54 @happytandemer @WendyPMitchell @george_rook https://www.tandfonline.com/doi/abs/10.1080/09687599.2021.1916887#

#DementiaEnquirers Pioneers summarise how researchers need to 'look and listen, listen and look'. So many examples of relatable, accessible research led by #expertsbyexperience @Innov_Dementia @NRS_NDN #researchpractice #partnersinresearch #dementia

Looking forward to joining the #DementiaEnquirers this morning. Always one of my favourite meetings. Its great to see what can be achieved when people living with dementia are put in the driving seat of research @Innov_Dementia @NRS_NDN #expertsbyexperience #partnersinresearch

If Tomorrow Never Comes

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/13/if-tomorrow-never-comes-2/

The Mad Book Chapter 5

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/13/the-mad-book-chapter-5/

Whose driving this thing?

👏@doryitsme @agnes_houston @howardgordon54 @happytandemer @WendyPMitchell @george_rook @TommyShakes @Innov_Dementia @JDisSoc

#DementiaEnquirers #DementiaResearch

The deadline for applying for a #DementiaEnquirers grant is the 25th June.
These are for research projects led by people with dementia.
Remember your project can be very simple
If you want the application forms please email rachael@myid.org.uk

https://dementiaenquirers.org.uk/

Fantastic work! Congratulations to all involved. Is the article available to read online?

#dementia #DementiaEnquirers #AcademicTwitter

So proud to have #DementiaEnquirers article published in @JDisSoc!

Coauthors @doryitsme @agnes_houston @howardgordon54 @happytandemer @WendyPMitchell @george_rook @TommyShakes

Ppl w #dementia in the driving seat of research!

@TNLComFund

The Mad Book Chapter 4

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/08/the-mad-book-chapter-4/

Play the Game: You're a Looney, You're In!

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/07/4769/

The Mad Book Chapter 2

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care http://toolate.blog/2021/06/06/the-mad-book-chapter-2/

Dementia is?
#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/05/dementia-we-all-know-what-it-is-dont-we/

Aspirin Keeps it at Bay!?
#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/06/01/aspirin-keeps-it-at-bay/

Nothing Compares

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/05/27/nothing-compares/

I think I'm lucky to get old!
#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/05/25/this-is-me-is-it-you-too/

Some Days are Diamonds
#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/05/24/some-days-are-diamonds/

I don't want to stop!
#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/05/20/im-now-being-told-that-i-can-not-use-the-backing-tracks-for-my-song-a-day-dementia-challenge/

Matchstalk Men and Matchstalk Cats and Dogs

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/05/20/matchstalk-men-and-matchstalk-cats-and-dogs/

Read all the latest news from the amazing #DementiaEnquirers here

https://bit.ly/33Z54Mz

People w #dementia in the driving seat of research

@TNLComFund

“The biggest encouragement we’ve had is that ppl have listened to us”

In our latest #DementiaEnquirers podcast, #DEEP groups + Pioneers reflect on their research reports, & what it's meant to them to be ‘in the driving seat’.

https://bit.ly/3oz7ElG

@TNLComFund

Leaving on a Jet Plane

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/05/19/leaving-on-a-jet-plane/

Thanks @Innov_Dementia for the fantastic booklets of our #DementiaEnquirers UK Transport Report. 42 pages of Research/Evidence/Conclusions/Recommendations by & for the very people it affects..those living with #Dementia We r busy posting them out. Thanks to @TNLComFund #DAW2021

Our key message for #DAW2021

Check out our sparkly new website https://dementiavoices-id.org.uk/

for info on #DementiaEnquirers #DementiaDiaries #DementiaCraftivists #DEEP #TipShare... and much more

@TNLComFund

Have a look ~ #DementiaAdventurers as well as #DementiaEnquirers

The title of this blog says it all……
#DAW2021 #dementiaenquirers

https://whichmeamitoday.wordpress.com/2021/05/17/we-believed-we-couldand-we-did/

Bridge Over Troubled Water
#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/05/17/bridge-over-troubled-water/

So proud of all #DementiaEnquirers #DEEP @TNLComFund

🥳To celebrate the upcoming #DementiaActionWeek please see our #DementiaEnquirers Report about #Transport led by our Directors Tommy & Paul who live with dementia. We will be sending printed copies out soon. Thanks to @Innov_Dementia & @TNLComFund https://dementiaenquirers.org.uk/individual-projects/thred-in-liverpool/

I'm Into Something Good by Herman's Hermits 1964

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/05/16/im-into-something-good-by-hermans-hermits-1964/

Thanks Andy, we are so proud of our #DementiaEnquirers research project & report about #Transport led by our 2 directors Tommy & Paul who live with dementia. Thanks to @Innov_Dementia & @TNLComFund & congrats to all the other great Projects led & controlled by pple with #Dementia

What a busy week we've had!

We're so delighted with the positive response to our new website https://dementiavoices-id.org.uk/

and to our 7 new #DementiaEnquirers reports https://dementiaenquirers.org.uk/individual-projects/

If you want a great end to your week
Please do take a quick peek!

@TNLComFund

Just had a celebratory zoom for those #dementiaenquirers projects launched yesterday. Such a variety of research questions here https://dementiaenquirers.org.uk/news/ few such research topics in academia. Why? Someone is not asking the right questions! Listen to and work with ppl living it!

What a lovely celebration of all the new #DementiaEnquirers projects this pm!

Best quote: "We're damned if we're going to let our reports sit on dusty shelves!"

Read them all here https://dementiaenquirers.org.uk/individual-projects/

The word is out! ‼️📢

Take a look at 7 #DementiaEnquirers reports lead, researched and concluded by people #LivingwithDementia including one form our @BethJohn64 peer support group!

Link: https://dementiaenquirers.org.uk/individual-projects/

Music's Magical Gift!

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/05/13/musics-magical-gift/

Alexa (Amazon Echo) has a lot to offer many ppl with #dementia.

But more support & accessibility needed for max benefit

Read this new #DementiaEnquirers report from EDUCATE Stockport - led by ppl w #dementia

https://bit.ly/3y7drTY

@JacquiBingham @detatton2233 @TNLComFund

New #DementiaEnquirers report led by 2 #DEEP groups
- Shrewsbury Riversiders & @YorkMandV - calls for closer relationship betw AdmiralNurses & the #DEEP Network

https://bit.ly/3tI7oBW

See all 7 new reports here https://bit.ly/3tDQB2R

@TNLComFund @DementiaUK @george_rook

Can't wait to read through this in more detail. Very proud to be one of the advisors to the #DementiaEnquirers and their brilliant work

Brilliant to see the outcomes from these #DementiaEnquirers research projects led by people with dementia - including this important report from @thredcic on how transport systems can help people diagnosed with dementia live independently for longer https://dementiaenquirers.org.uk/individual-projects/thred-in-liverpool/

Fantastic news from @Innov_Dementia who have just launched seven #DementiaEnquirers reports - research led & controlled by people living with #dementia. Great to see!

It's a big news day for us! So proud to launch 7 #DementiaEnquirers reports - research projects led & controlled by ppl with #dementia You can read the reports here https://dementiaenquirers.org.uk/individual-projects/ Thanks to @TNLComFund for funding

There's never a good time for this!
#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care https://toolate.blog/2021/05/10/theres-never-a-good-time-for-this/

Calling all #DEEP groups - have you checked out the next round of #DementiaEnquirers grants yet? Great opportunity to get stuck into a project, lead your own research and have some fun together. You should have received an email or contact rachael@myid.org.uk

From today all our tweets come under this one roof

Diverse Dementia Voices from #DementiaEnquirers #DEEP #DementiaDiaries #GettingAlong #DementiaCraftivists & so much more...

don't forget from tomorrow all @DementiaTweets @DementiaVoices tweets will come under the one twitter account - @Innov_Dementia - punching above our weight!
#DementiaDiaries
#DementiaEnquirers
#DementiaCraftivists
#DementiaTipshare
#DEEP
#GettingAlong
#AGoodLifeWithDementia

Still not one attempt at putting this into plain English!

#dementiavoices
#DementiaEnquirers #carers #seniorcare #caregiving #dementiacaregiver #ageuk #care

For Our Eyes Only!

listen and read along, or just listen! When I asked the question: What does ‘Oxidative stress and neuronal energy depletion are characteristic b...

toolate.blog

Fantastic film - congratulations #dementiaenquirers for everything you’re achieving 🌟⭐️