Dementia Enquirers

The ground-breaking Dementia Enquirers programme has supported over 20 groups of people living with dementia to conduct their own small-scale research projects. It has developed a new approach to research, or ‘enquiry’, that is led and controlled by people with dementia themselves.

On this website we share all the learning from the programme. We are keen to influence the prevailing approaches in research – while bringing new respect for the skills, expertise and resilience of those who are living with dementia.

Click to find out more about Dementia Enquirers

Latest PROJECTS

  • Confidence in public transport

  • Enquiry on how easy it is to find print based information on dementia services in Camden

  • How living through COVID-19 pandemic and lockdown affected physical and mental well being for people with dementia

  • Does dementia testing need testing?

  • Dementia as an invisible disability – Pros and Cons

  • Can a dementia diagnosis open doors to new opportunities?

  • Derby Visitor Attractions through the eyes of a person living with dementia

  • Post-diagnosis dementia support – ideas on improving practice

  • Therapeutic Values of Involvement in Practical Music Making

  • Researching with a University

  • An intergenerational game

  • Contributing to the new Fife Dementia Strategy

Publications

  • Summaries of Dementia Enquirers projects

  • What do we mean by the ‘driving seat model’?

  • Our learning about research ethics

  • Our learning for dementia research funders

  • Our learning for DEEP groups and people with dementia

  • Our learning on communication and accessibility

  • Our learning for academics

  • Key messages from Dementia Enquirers

  • Disability & Society

  • The Right to a Grand Day Out

  • How to do a Research Project

  • The Dementia Enquirers Gold Standards for Ethical Research

NEWS

  • Newsletter 21 – May 2023

  • Dementia Enquirers winner of 2023 Dementia Hero Award for Research and Innovation

  • End of Phase 1

  • Blog by Marney Walker

  • Bog by Jacoba Huizenga

  • Newsletter 20 – February 2023

MEDIA

  •

    What can we learn from Dementia Enquirers about Epistemic Injustice?

  •

    What does learning from Dementia Enquirers mean to the NHS?

  •

    Putting people with dementia at the heart of research

  •

    People with dementia in the driving seat of research

  •

    Our Legacy

  •

    Challenging research ethics processes through Dementia Enquirers

ADVISORS

  • Professor Dawn Brooker

  • Professor Tom Shakespeare

  • Dr Rosie Ashworth

  • Dr David Crepaz Keay

  • Dr Lucy Series

COLLABORATOR SITES